{"id":5372,"date":"2025-12-24T19:06:20","date_gmt":"2025-12-24T10:06:20","guid":{"rendered":"https:\/\/readtrends.com\/ko\/lee-jae-myung-rare-disease-talk\/"},"modified":"2025-12-24T19:06:20","modified_gmt":"2025-12-24T10:06:20","slug":"lee-jae-myung-rare-disease-talk","status":"publish","type":"post","link":"https:\/\/readtrends.com\/ko\/lee-jae-myung-rare-disease-talk\/","title":{"rendered":"\uc774\uc7ac\uba85 \ub300\ud1b5\ub839, \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0\u00b7\uac00\uc871\uacfc \uc2e0\ucd0c\uc138\ube0c\ub780\uc2a4\uc11c \ud604\uc7a5 \uc18c\ud1b5"},"content":{"rendered":"<article>\n<p><strong>\ud575\uc2ec \uc694\uc57d:<\/strong> \uc774\uc7ac\uba85 \ub300\ud1b5\ub839\uacfc \uae40\ud61c\uacbd \uc5ec\uc0ac\ub294 4\uc6d4 24\uc77c \uc11c\uc6b8 \uc2e0\ucd0c\uc138\ube0c\ub780\uc2a4 \uc5f0\uc138\uc554\ubcd1\uc6d0 \uc911\uc785\uc790\uce58\ub8cc\uc13c\ud130\uc5d0\uc11c \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0\uc640 \uac00\uc871\uc744 \ub9cc\ub098 \ud604\uc7a5 \uc18c\ud1b5 \uac04\ub2f4\ud68c\ub97c \uc5f4\uc5c8\ub2e4. \ub300\ud1b5\ub839\uc740 \ud76c\uadc0\uc9c8\ud658 \uce58\ub8cc\uc758 \uac1c\uc778 \ubd80\ub2f4\uc744 \uc9c0\uc801\ud558\uba70 \uc815\ubd80 \ucc28\uc6d0\uc758 \uc9c4\ub2e8\u00b7\uce58\ub8cc\u00b7\ubcf5\uc9c0 \uc804\ubc18 \uac1c\uc120\ucc45\uc744 \uc900\ube44 \uc911\uc774\ub77c\uace0 \ubc1d\ud614\ub2e4. \ubcf5\uc9c0\ubd80 \uc7a5\uad00, \uc2dd\uc57d\ucc98\uc7a5, \uc9c8\ubcd1\uccad\uc7a5 \ub4f1 \uad00\ub828 \uc7a5\u00b7\ucc28\uad00\uc774 \uad6c\uccb4\uc801 \uc9c8\uc758\uc5d0 \ub2f5\ubcc0\ud588\uace0 \uc815\ubd80\ub294 \uc81c\ub3c4 \uac1c\uc120 \uc758\uc9c0\ub97c \uc7ac\ud655\uc778\ud588\ub2e4. \ud589\uc0ac \ub9d0\ubbf8\uc5d0\ub294 \ud658\uc6b0\uc5d0\uac8c \uc120\ubb3c\uc774 \uc804\ud574\uc9c0\uace0 \ud604\uc7a5 \uad50\uac10\uc774 \uc774\uc5b4\uc84c\ub2e4.<\/p>\n<h2>\ud575\uc2ec \uc0ac\uc2e4<\/h2>\n<ul>\n<li>\uc77c\uc2dc\u00b7\uc7a5\uc18c: 4\uc6d4 24\uc77c, \uc2e0\ucd0c\uc138\ube0c\ub780\uc2a4 \uc5f0\uc138\uc554\ubcd1\uc6d0 \uc911\uc785\uc790\uce58\ub8cc\uc13c\ud130\uc5d0\uc11c \uac04\ub2f4\ud68c \uac1c\ucd5c.<\/li>\n<li>\uc8fc\uc694 \ucc38\uc11d\uc790: \uc774\uc7ac\uba85 \ub300\ud1b5\ub839\u00b7\uae40\ud61c\uacbd \uc5ec\uc0ac, \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0 \ubc0f \uac00\uc871, \uc5f0\uc138\uc758\ub8cc\uc6d0 \uad00\uacc4\uc790, \ubcf5\uc9c0\ubd80\u00b7\uc2dd\uc57d\ucc98\u00b7\uc9c8\ubcd1\uccad \ub4f1 \uc815\ubd80 \uad00\uacc4\uc790.<\/li>\n<li>\uc8fc\uc694 \uc758\uc81c: \uc0b0\uc815\ud2b9\ub840 \ubcf8\uc778\ubd80\ub2f4\ub960 \uc644\ud654, \uac74\uac15\ubcf4\ud5d8 \uae09\uc5ec \uc801\uc6a9 \ud655\ub300, \uc758\ub8cc\ube44\u00b7\ud65c\ub3d9\uc9c0\uc6d0 \uc0ac\uc5c5 \ud655\ub300 \ub4f1 \uc815\ucc45 \uac1c\uc120 \uc694\uad6c \uc81c\uae30.<\/li>\n<li>\uc815\ubd80 \ub300\uc751: \uad00\ub828 \ubd80\ucc98 \uc7a5\u00b7\ucc28\uad00\uc774 \uc9c8\uc758\uc5d0 \ub300\ud574 \ub2f5\ubcc0\ud558\uace0 \ud5a5\ud6c4 \uac1c\uc120\ucc45 \ub9c8\ub828\uc744 \uc57d\uc18d.<\/li>\n<li>\ub300\ud1b5\ub839 \ubc1c\uc5b8: &#8220;\ud76c\uadc0\uc9c8\ud658 \uce58\ub8cc \ubb38\uc81c\ub294 \uac1c\uc778\uc774 \uac10\ub2f9\ud558\uae30 \uc5b4\ub824\uc6b4 \uacfc\uc81c&#8221;\ub77c\uba70 \uc18c\uc218\uc790 \ubc30\uc81c \ubc29\uc9c0\uc640 \uc9c0\uc6d0 \uac15\ud654\ub97c \uac15\uc870.<\/li>\n<li>\ud604\uc7a5 \uc18c\ud1b5 \ubc29\uc2dd: \ud658\uc6b0\uc640 \uac00\uc871\uc758 \uace0\ucda9\uc744 \uccad\ucde8\ud558\ub294 \uac04\ub2f4\ud68c \ud615\uc2dd\uc73c\ub85c \uc9c4\ud589\ub410\uace0, \ub300\ud1b5\ub839 \ubd80\ubd80\uac00 \uc9c1\uc811 \uc120\ubb3c \uc804\ub2ec \ubc0f \ud658\ub2f4\uc744 \uc9c4\ud589.<\/li>\n<li>\uae30\ub150 \uc0c1\ud669: \ub300\ud1b5\ub839\uc774 \ud658\uc6b0\uc758 \uc774\ub984\uc744 \ubd80\ub974\uba70 \uc778\uc0ac\ud558\uace0, \uc5b4\ub9b0 \ud658\uc6b0\uac00 \uc804\ub2ec\ud55c \uac10\uc0ac \uce74\ub4dc\uc5d0 \ud654\ub2f5.<\/li>\n<\/ul>\n<h2>\uc0ac\uac74 \ubc30\uacbd<\/h2>\n<p>\ud76c\uadc0\uc9c8\ud658 \ud658\uc790\ub294 \uc9c8\ubcd1 \ud2b9\uc131\uc0c1 \uc9c4\ub2e8\uacfc \uce58\ub8cc\uac00 \ubcf5\uc7a1\ud558\uace0 \ube44\uc6a9\uc774 \ud06c\uba70, \uc9c0\uc5ed\u00b7\ubcd1\uc6d0\ubcc4 \uce58\ub8cc \uc811\uadfc\uc131\uc5d0\ub3c4 \ucc28\uc774\uac00 \uc788\ub2e4. \uc6b0\ub9ac\ub098\ub77c\uc5d0\uc11c\ub294 \uc77c\ubd80 \ud76c\uadc0\u00b7\uc911\uc99d \ub09c\uce58\uc9c8\ud658\uc5d0 \ub300\ud574 \uc0b0\uc815\ud2b9\ub840 \uc81c\ub3c4\ub97c \ud1b5\ud574 \ubcf8\uc778\ubd80\ub2f4\ub960\uc744 \uacbd\uac10\ud558\uc9c0\ub9cc \ub300\uc0c1\uacfc \uc801\uc6a9 \ubc94\uc704, \uae09\uc5ec\ud654 \uc218\uc900\uc5d0\uc11c \ud658\uc790\u00b7\uac00\uc871\uc758 \ubd88\ub9cc\uc774 \uc9c0\uc18d\ub418\uc5b4 \uc654\ub2e4. \uc911\uc785\uc790\uce58\ub8cc \uac19\uc740 \uace0\ub09c\ub3c4 \uce58\ub8cc\ub294 \uc7a5\ube44\uc640 \uc804\ubb38 \uc778\ub825, \uc758\ub8cc\ube44 \ubd80\ub2f4 \uce21\uba74\uc5d0\uc11c \ud658\uc790 \ubcf4\ud638 \uc7a5\uce58\uac00 \ud544\uc218\uc801\uc774\ub77c\ub294 \uc9c0\uc801\uc774 \ub098\uc628\ub2e4. \uc815\ubd80\uc640 \uc758\ub8cc\uacc4\ub294 \uc784\uc0c1 \uc5f0\uad6c\uc640 \uce58\ub8cc \uc778\ud504\ub77c \ud655\ucda9, \ubcf4\ud5d8 \uc801\uc6a9 \ud655\ub300\ub97c \ub193\uace0 \ub17c\uc758\ub97c \uc774\uc5b4\uc654\uace0, \uc774\ubc88 \ud604\uc7a5 \uc18c\ud1b5\uc740 \uadf8 \uc5f0\uc7a5\uc120\uc5d0\uc11c \uc9c4\ud589\ub410\ub2e4.<\/p>\n<p>\uc815\uce58\uc801\uc73c\ub85c\ub3c4 \ud76c\uadc0\uc9c8\ud658 \uc9c0\uc6d0\uc740 \ubcf5\uc9c0\uc815\ucc45\uc758 \uc0c1\uc9d5\uc801 \uacfc\uc81c\ub85c \uc5ec\uaca8\uc9c4\ub2e4. \uc791\uc740 \ud658\uc790 \uc9d1\ub2e8\uc774\ub77c\ub3c4 \uc0ac\ud68c \uc548\uc804\ub9dd\uc744 \ud1b5\ud574 \ubcf4\ud638\ud558\ub294\uc9c0 \uc5ec\ubd80\ub294 \uc815\ubd80\uc758 \ubcf5\uc9c0\ucca0\ud559\uacfc \uc7ac\uc815 \uc6b0\uc120\uc21c\uc704 \ud310\ub2e8\uc744 \ub4dc\ub7ec\ub0b8\ub2e4. \uacfc\uac70 \uc815\ubd80\ub4e4 \uc5ed\uc2dc \uc0b0\uc815\ud2b9\ub840 \ud655\ub300\uc640 \uae09\uc5ec \uc804\ud658\uc744 \ub2e8\uacc4\uc801\uc73c\ub85c \ucd94\uc9c4\ud588\uc73c\ub098 \uc608\uc0b0\u00b7\uc81c\ub3c4\uc801 \ud55c\uacc4\ub85c \uc804\uba74\uc801 \uac1c\uc120\uc740 \ub2a6\uc5b4\uc84c\ub2e4. \uc774\ud574\uad00\uacc4\uc790\ub294 \ud658\uc790\u00b7\uac00\uc871, \uc758\ub8cc\uae30\uad00, \ubcf4\uac74\ub2f9\uad6d, \uc608\uc0b0 \ub2f4\ub2f9 \ubd80\ucc98 \ub4f1\uc73c\ub85c \ub2e4\uce35\uc801\uc774\uba70, \uc0c1\ud638 \uc870\uc815\uc774 \ud544\uc694\ud55c \uad6c\uc870\ub2e4.<\/p>\n<h2>\uc8fc\uc694 \uc0ac\uac74<\/h2>\n<p>\ud589\uc0ac\ub294 \uc5f0\uc138\uc758\ub8cc\uc6d0 \uce21 \ucd08\uccad\uc73c\ub85c \uc2dc\uc791\ub3fc \ud658\uc6b0 \uac00\uc871\ub4e4\uc758 \ubc1c\uc5b8\uacfc \uac74\uc758, \uc815\ubd80 \uce21 \ub2f5\ubcc0 \uc21c\uc73c\ub85c \uc9c4\ud589\ub410\ub2e4. \uc774 \ub300\ud1b5\ub839\uc740 \ubaa8\ub450\ubc1c\uc5b8\uc5d0\uc11c \ud658\uc790\u00b7\uac00\uc871\uc758 \uc5b4\ub824\uc6c0\uc744 \uc9c1\uc811 \uc5b8\uae09\ud558\uba70 \uc815\ucc45 \uc6b0\uc120\uc21c\uc704\ub97c \uc7ac\uac80\ud1a0\ud558\uaca0\ub2e4\ub294 \ub73b\uc744 \ud53c\ub825\ud588\ub2e4. \uc774\ud6c4 \uac04\ub2f4\ud68c\uc5d0\uc11c \ud658\uc6b0 \uce21\uc740 \uc0b0\uc815\ud2b9\ub840 \uc801\uc6a9 \ud655\ub300\uc640 \uae09\uc5ec \uc804\ud658, \ud65c\ub3d9\uc9c0\uc6d0 \ud655\ub300 \ub4f1 \uad6c\uccb4\uc801 \uc694\uad6c\ub97c \uc81c\uc2dc\ud588\ub2e4.<\/p>\n<p>\ubcf5\uc9c0\ubd80 \uc7a5\uad00\u00b7\uc2dd\uc57d\ucc98\uc7a5\u00b7\uc9c8\ubcd1\uccad\uc7a5\uc740 \uac01 \ud56d\ubaa9\uc5d0 \ub300\ud574 \ud604\ud669 \uc124\uba85\uacfc \ud568\uaed8 \uac80\ud1a0 \uacc4\ud68d\uc744 \ubc1d\ud614\ub2e4. \ucc38\uc11d\uc790\ub4e4\uc5d0 \ub530\ub974\uba74 \uc7a5\u00b7\ucc28\uad00\uc740 \uac1c\uc120 \ud544\uc694\uc131\uc744 \uc778\uc815\ud558\uba74\uc11c\ub3c4 \ubc95\uc801\u00b7\uc7ac\uc815\uc801 \uc808\ucc28\uc640 \ub2e8\uacc4\ubcc4 \uc774\ud589 \uacc4\ud68d\uc774 \ud544\uc694\ud558\ub2e4\uace0 \uc124\uba85\ud588\ub2e4. \ub300\ud1b5\ub839\uc740 \ud604\uc7a5\uc758 \ubaa9\uc18c\ub9ac\ub97c \uc218\uc9d1\ud558\uba70 \uad6d\ub0b4 \ud658\uc790 \uc218 \ub4f1 \ud1b5\uacc4\uc5d0 \ub300\ud55c \uc9c8\uc758\ub97c \ud1b5\ud574 \uc815\ucc45 \uadfc\uac70\ub97c \ud655\uc778\ud558\ub824\ub294 \ubaa8\uc2b5\uc744 \ubcf4\uc600\ub2e4.<\/p>\n<p>\uac04\ub2f4\ud68c \ub9d0\ubbf8\uc5d0\ub294 \ub300\ud1b5\ub839 \ubd80\ubd80\uac00 \ud658\uc6b0\uc5d0\uac8c \uae30\ub150 \uc120\ubb3c\uc744 \uc804\ub2ec\ud558\uace0 \uc0ac\uc9c4 \ucd2c\uc601\uc744 \ud558\ub294 \ub4f1 \ud654\uae30\uc560\uc560\ud55c \ub9c8\ubb34\ub9ac\uac00 \uc774\uc5b4\uc84c\ub2e4. \ud604\uc7a5\uc5d0\uc11c \uc804\ud574\uc9c4 \uc5b4\ub9b0 \ud658\uc6b0\uc758 \uac10\uc0ac \uce74\ub4dc\ub294 \ub300\ud1b5\ub839 \ub0b4\uc678\uac00 \uc9c1\uc811 \ud655\uc778\ud588\uace0, \uc77c\ubd80 \ud658\uc6b0\uc640\ub294 \uc545\uc218\u00b7\ud558\uc774\ud30c\uc774\ube0c\ub85c \uc751\uc6d0\ud558\ub294 \uc7a5\uba74\uc774 \uc788\uc5c8\ub2e4.<\/p>\n<h2>\ubd84\uc11d \ubc0f \uc758\ubbf8<\/h2>\n<p>\uc774\ubc88 \ud604\uc7a5 \uc18c\ud1b5\uc740 \uc815\ucc45 \ud604\uc7a5\uc131 \uac15\ud654\uc640 &#8216;\ud53c\uc9c0\ud5a5\uce35&#8217;\uc758 \ubaa9\uc18c\ub9ac\ub97c \uac00\uc2dc\ud654\ud558\ub824\ub294 \uc815\ubd80\uc758 \uc758\uc9c0\ub97c \ub4dc\ub7ec\ub0b8\ub2e4. \ud76c\uadc0\uc9c8\ud658\uc740 \ud658\uc790 \uc218\uac00 \uc801\uc5b4\ub3c4 \uc758\ub8cc\ube44\u00b7\uc0dd\ud65c\uc9c0\uc6d0\uc758 \ubd80\ub2f4\uc774 \ud06c\uae30 \ub54c\ubb38\uc5d0 \uc815\ucc45\uc801 \ubc30\ub824\uac00 \uc694\uad6c\ub41c\ub2e4. \ub300\ud1b5\ub839\uc758 \uc9c1\uc811 \uc9c8\uc758\uc640 \uc7a5\u00b7\ucc28\uad00\uc758 \ud604\uc7a5 \ub2f5\ubcc0\uc740 \ud5a5\ud6c4 \uc81c\ub3c4 \uac1c\uc120 \ub17c\uc758\uc5d0\uc11c \ud658\uc790 \uc694\uad6c\ub97c \ubc18\uc601\ud558\uaca0\ub2e4\ub294 \uc2e0\ud638\ub85c \ud574\uc11d\ub420 \uc218 \uc788\ub2e4.<\/p>\n<p>\uc2e4\ubb34\uc801\uc73c\ub85c\ub294 \uc0b0\uc815\ud2b9\ub840 \ubc94\uc704 \ud655\ub300\uc640 \uae09\uc5ec \uc804\ud658\uc774 \ud575\uc2ec \uc7c1\uc810\uc774 \ub420 \uac83\uc774\ub2e4. \uc774\ub294 \ubcf4\uc7a5\uc131 \ud655\ub300\uc640 \uc7ac\uc815 \ubd80\ub2f4 \uac04\uc758 \uade0\ud615 \ubb38\uc81c\uc640 \uacb0\ubd80\ub3fc \uc788\ub2e4. \uc815\ucc45 \uacb0\uc815 \uc774\ud6c4\uc5d0\ub294 \ub300\uc0c1 \uc9c8\ud658 \uc120\uc815 \uae30\uc900, \uc18c\uae09 \uc801\uc6a9 \uc5ec\ubd80, \uc608\uc0b0 \ubc30\uce58 \uc2dc\uc810 \ub4f1 \uc138\ubd80 \uc124\uacc4\uac00 \ub0a8\uc544 \uc788\ub2e4. \uc758\ub8cc\uacc4\uc758 \uae30\uc220\uc801 \uc5ed\ub7c9\uacfc \uc911\uc785\uc790\uce58\ub8cc \uac19\uc740 \uace0\ub09c\ub3c4 \uce58\ub8cc\uc758 \uacf5\uae09 \ud655\ub300 \uc5ec\ubd80\ub3c4 \uc815\ucc45 \ud6a8\uacfc\ub97c \uc88c\uc6b0\ud560 \ubcc0\uc218\ub2e4.<\/p>\n<p>\uc815\uce58\uc801 \ud30c\uae09\ud6a8\uacfc\ub3c4 \uad00\ucc30\ub41c\ub2e4. \ud76c\uadc0\uc9c8\ud658\uc5d0 \ub300\ud55c \uc815\ubd80\uc758 \uad6c\uccb4\uc801 \ub300\ucc45 \uc81c\uc2dc\ub294 \uc0ac\ud68c\uc801 \uc5f0\ub300 \uc758\uc9c0\ub97c \ubcf4\uc5ec\uc8fc\ub294 \ud55c\ud3b8, \uc7ac\uc815 \ubd80\ub2f4\uc744 \ub458\ub7ec\uc2fc \uc5ec\uc57c \uac04 \uc7c1\uc810\ud654 \uac00\ub2a5\uc131\ub3c4 \uc874\uc7ac\ud55c\ub2e4. \uad6d\uc81c\uc801 \ub9e5\ub77d\uc5d0\uc11c\ub294 \ud76c\uadc0\uc9c8\ud658 \uce58\ub8cc\u00b7\uc5f0\uad6c \ud611\ub825\uacfc \ud76c\uadc0\uc9c8\ud658 \uc815\ucc45 \ube44\uad50\ub97c \ud1b5\ud574 \uad6d\ub0b4 \uc815\ucc45 \uac1c\uc120 \ubc29\ud5a5\uc744 \ucc3e\uc744 \uc218 \uc788\ub2e4. \ud5a5\ud6c4 \ucd94\uc9c4 \uc18d\ub3c4\uc640 \uc2e4\ud6a8\uc131\uc740 \uc608\uc0b0 \ud655\ubcf4\uc640 \ubc95\u00b7\uc81c\ub3c4 \uc815\ube44\uc5d0 \ub2ec\ub824 \uc788\ub2e4.<\/p>\n<figure>\n<table>\n<thead>\n<tr>\n<th>\uc694\uad6c \ud56d\ubaa9<\/th>\n<th>\uac04\ub2f4\ud68c\uc5d0\uc11c\uc758 \uc815\ubd80 \ub2f5\ubcc0(\uc694\uc9c0)<\/th>\n<\/tr>\n<\/thead>\n<tbody>\n<tr>\n<td>\uc0b0\uc815\ud2b9\ub840 \ubcf8\uc778\ubd80\ub2f4 \uc644\ud654<\/td>\n<td>\uc644\ud654 \ud544\uc694\uc131 \uc778\uc815, \uac80\ud1a0 \ubc0f \uc81c\ub3c4 \uac1c\uc120 \ubc29\ud5a5 \ub9c8\ub828 \uc608\uc815<\/td>\n<\/tr>\n<tr>\n<td>\uac74\uac15\ubcf4\ud5d8 \uae09\uc5ec \uc801\uc6a9 \ud655\ub300<\/td>\n<td>\uae09\uc5ec \ud655\ub300 \uac80\ud1a0 \uc911\uc774\uba70 \ub2e8\uacc4\uc801 \uc774\ud589 \ubc29\uc548 \ubaa8\uc0c9<\/td>\n<\/tr>\n<tr>\n<td>\uc758\ub8cc\ube44\u00b7\ud65c\ub3d9\uc9c0\uc6d0 \ud655\ub300<\/td>\n<td>\ud504\ub85c\uadf8\ub7a8 \ud655\ub300 \ubc29\uc548\uacfc \uc608\uc0b0 \ubc18\uc601 \ubc29\uc548 \uac80\ud1a0<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/figure>\n<p>\uc704 \ud45c\ub294 \uac04\ub2f4\ud68c\uc5d0\uc11c \uc81c\uae30\ub41c \uc8fc\uc694 \uc694\uad6c\uc640 \uc815\ubd80 \uce21 \ub2f5\ubcc0 \uc694\uc9c0\ub97c \uc815\ub9ac\ud55c \uac83\uc774\ub2e4. \uc815\ubd80\uc758 \ub2f5\ubcc0\uc740 \ud604\ud669 \uc124\uba85\uacfc \ud568\uaed8 \ucd94\uac00 \uac80\ud1a0\u00b7\uacc4\ud68d \uc218\ub9bd \uc758\uc9c0\ub97c \ub2f4\uace0 \uc788\uc5b4, \uc2e4\uc81c \uc81c\ub3c4\ud654\uc5d0\ub294 \ucd94\uac00\uc801\uc778 \uc808\ucc28\uac00 \ud544\uc694\ud558\ub2e4. \ud45c\uc5d0 \uae30\uc7ac\ub41c &#8220;\uac80\ud1a0&#8221;\uc640 &#8220;\ubaa8\uc0c9&#8221;\uc740 \uc815\ucc45 \ubc29\ud5a5\uc744 \uc758\ubbf8\ud558\uba70 \uad6c\uccb4\uc801 \uc2dc\ud589 \uc2dc\uc810\uc740 \ubcc4\ub3c4 \uacf5\uac1c\uac00 \ud544\uc694\ud558\ub2e4.<\/p>\n<h2>\ubc18\uc751 \ubc0f \uc778\uc6a9<\/h2>\n<p>\ub300\ud1b5\ub839\uc758 \ubc1c\uc5b8\uc740 \ud589\uc0ac \ucde8\uc9c0\uc640 \uc815\ucc45 \uc758\uc9c0\ub97c \uc9c1\uc811\uc801\uc73c\ub85c \ub4dc\ub7ec\ub0c8\ub2e4. \ud604\uc7a5\uc5d0\uc11c\ub294 \ub300\ud1b5\ub839\uc758 \uc9c1\uc811 \uc18c\ud1b5\uc774 \ud658\uc6b0 \uac00\uc871\ub4e4\uc5d0\uac8c \uc704\uc548\uc774 \ub410\ub2e4\ub294 \ud3c9\uac00\uac00 \ub098\uc654\ub2e4.<\/p>\n<blockquote>\n<p>&#8220;\ud76c\uadc0\uc9c8\ud658 \uce58\ub8cc \ubb38\uc81c\ub294 \uac1c\uc778\uc774 \uac10\ub2f9\ud558\uae30 \uc5b4\ub824\uc6b4 \uacfc\uc81c&#8221;<\/p>\n<p><cite>\uc774\uc7ac\uba85 \ub300\ud1b5\ub839<\/cite><\/p><\/blockquote>\n<p>\ub300\ud1b5\ub839\uc2e4 \uce21\uc740 \ud589\uc0ac\uc758 \ubaa9\uc801\uc744 \uacf5\uc2dd \ube0c\ub9ac\ud551\uc744 \ud1b5\ud574 \uc54c\ub838\ub2e4. \ud589\uc0ac \uac1c\ucd5c \uc0ac\uc2e4\uacfc \ucde8\uc9c0\ub294 \ub300\ud1b5\ub839\uc2e4 \ub300\ubcc0\uc778\uc774 \uccad\uc640\ub300 \ucd98\ucd94\uad00 \ube0c\ub9ac\ud551\uc5d0\uc11c \uacf5\uac1c\ud588\ub2e4.<\/p>\n<blockquote>\n<p>&#8220;\uc774\ubc88 \ud589\uc0ac\ub294 \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0\uc640 \uac00\uc871\uc758 \ubaa9\uc18c\ub9ac\ub97c \uc9c1\uc811 \uccad\ucde8\ud558\uae30 \uc704\ud574 \ub9c8\ub828\ub410\ub2e4&#8221;<\/p>\n<p><cite>\uae40\ub0a8\uc900 \ub300\ud1b5\ub839\uc2e4 \ub300\ubcc0\uc778(\ube0c\ub9ac\ud551 \uc694\uc9c0)<\/cite><\/p><\/blockquote>\n<p>\uc815\ubd80 \uad00\uacc4\uc790\uc758 \ub2f5\ubcc0\uc740 \uc81c\ub3c4 \uac1c\uc120 \uc758\uc9c0\uc640 \ud568\uaed8 \ud604\uc2e4\uc801 \uc81c\uc57d\uc744 \ub3d9\uc2dc\uc5d0 \uc5b8\uae09\ud558\ub294 \ud615\ud0dc\uc600\ub2e4. \ud5a5\ud6c4 \ud6c4\uc18d \uc870\uce58\uac00 \uc815\ucc45\uc758 \uc9c4\uc815\ud55c \uc131\uacfc\ub97c \uacb0\uc815\ud560 \uac83\uc774\ub2e4.<\/p>\n<blockquote>\n<p>&#8220;\uce58\ub8cc\u00b7\uc9c4\ub2e8\u00b7\ubcf5\uc9c0 \uc9c0\uc6d0 \uc804\ubc18\uc5d0 \uac78\uce5c \uac1c\uc120\ucc45\uc744 \uc900\ube44 \uc911\uc774\ub2e4&#8221;<\/p>\n<p><cite>\uc815\ubd80 \uad00\uacc4\uc790(\ubcf5\uc9c0\ubd80\u00b7\ub2f5\ubcc0 \uc694\uc9c0)<\/cite><\/p><\/blockquote>\n<aside>\n<details>\n<summary>\uc6a9\uc5b4\/\ubc29\ubc95\ub860<\/summary>\n<p>\uc0b0\uc815\ud2b9\ub840\ub294 \uc911\uc99d\u00b7\ud76c\uadc0\uc9c8\ud658\uc790\uc5d0 \ub300\ud574 \uac74\uac15\ubcf4\ud5d8 \ubcf8\uc778\ubd80\ub2f4\ub960\uc744 \ub0ae\ucd94\ub294 \uc81c\ub3c4\ub2e4. \uac74\uac15\ubcf4\ud5d8 \uae09\uc5ec \uc801\uc6a9 \ud655\ub300\ub294 \ud2b9\uc815 \uce58\ub8cc\u00b7\uc57d\uc81c\uc5d0 \ub300\ud574 \ubcf4\ud5d8 \uc801\uc6a9 \ubc94\uc704\ub97c \ub113\ud600 \ud658\uc790\uc758 \ube44\uc6a9 \ubd80\ub2f4\uc744 \uc904\uc774\ub294 \ubc29\uc548\uc774\ub2e4. \uc911\uc785\uc790\uce58\ub8cc\ub294 \uace0\uc5d0\ub108\uc9c0 \uc785\uc790\ub97c \uc774\uc6a9\ud55c \ubc29\uc0ac\uc120 \uce58\ub8cc\uc758 \uc77c\uc885\uc73c\ub85c \ud2b9\uc815 \uc885\uc591\uc5d0\uc11c \ud6a8\uacfc\ub97c \ubcf4\uc774\ub294 \uace0\ub09c\ub3c4 \uce58\ub8cc\ubc95\uc774\ub2e4. \ubcf8 \uae30\uc0ac\uc5d0\uc11c\ub294 \uc815\ubd80 \ubc1c\ud45c\uc640 \uac04\ub2f4\ud68c \ubc1c\uc5b8\uc744 \uadfc\uac70\ub85c \uc0ac\uc2e4\uacfc \ud574\uc11d\uc744 \uad6c\ubd84\ud574 \uc11c\uc220\ud588\ub2e4. \uc815\ucc45 \ubcc0\ud654\uc758 \uad6c\uccb4\uc801 \uc77c\uc815\uacfc \uc608\uc0b0 \ubc30\uc815 \uc5ec\ubd80\ub294 \ubcc4\ub3c4 \uacf5\uc2dd \ubc1c\ud45c\ub97c \ud1b5\ud574 \ud655\uc778\ud574\uc57c \ud55c\ub2e4.<\/p>\n<\/details>\n<\/aside>\n<h2>\ubd88\ud655\uc2e4\ud55c \ubd80\ubd84<\/h2>\n<ul>\n<li>\uad6d\ub0b4 \ud76c\uadc0\uc9c8\ud658 \ud658\uc790 \uc815\ud655\ud55c \uc218\uce58\ub294 \uac04\ub2f4\ud68c\uc5d0\uc11c \uad6c\uccb4\uc801 \uacf5\uac1c\uac00 \uc5c6\uc5c8\uc73c\uba70, \uc9d1\uacc4 \ubc29\uc2dd\uc5d0 \ub530\ub77c \ucc28\uc774\uac00 \uc788\uc744 \uc218 \uc788\ub2e4.<\/li>\n<li>\uc0b0\uc815\ud2b9\ub840 \ubc0f \uae09\uc5ec \ud655\ub300\uc758 \uad6c\uccb4\uc801 \uc2dc\ud589 \uc2dc\uc810\uacfc \ub300\uc0c1 \uc9c8\ud658 \ubaa9\ub85d\uc740 \uc544\uc9c1 \ucd5c\uc885 \ud655\uc815\ub418\uc9c0 \uc54a\uc558\ub2e4.<\/li>\n<li>\uc7ac\uc815 \ubc18\uc601 \ubc29\uc2dd\uacfc \uc608\uc0b0 \uaddc\ubaa8\ub294 \uc815\ubd80 \ub0b4\ubd80 \uac80\ud1a0\uc640 \uad6d\ud68c \uc2ec\uc758 \uacfc\uc815\uc744 \uac70\uccd0\uc57c \ud655\uc815\ub41c\ub2e4.<\/li>\n<\/ul>\n<h2>\ucd1d\ud3c9<\/h2>\n<p>\uc774\ubc88 \ud604\uc7a5 \uc18c\ud1b5\uc740 \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0\ub4e4\uc758 \uad6c\uccb4\uc801 \uc694\uad6c\uac00 \uc815\ucc45 \uc758\uc81c\ub85c \uc62c\ub77c\uac14\ub2e4\ub294 \uc810\uc5d0\uc11c \uc758\ubbf8\uac00 \uc788\ub2e4. \ub300\ud1b5\ub839\uacfc \uad00\ub828 \ubd80\ucc98\uc758 \uc9c1\uc811 \uc18c\ud1b5\uc740 \ud5a5\ud6c4 \uc81c\ub3c4 \uc124\uacc4 \uacfc\uc815\uc5d0\uc11c \ub2f9\uc0ac\uc790 \ubaa9\uc18c\ub9ac\uac00 \ubc18\uc601\ub420 \uac00\ub2a5\uc131\uc744 \ub192\uc778\ub2e4. \ub2e4\ub9cc \uc81c\ub3c4 \ubcc0\uacbd\uc758 \uc2e4\ud6a8\uc131\uc740 \uc7ac\uc815\u00b7\ubc95\uc801 \uc808\ucc28\uc640 \ubcd1\ud589\ub3fc\uc57c \ud558\ubbc0\ub85c, \ub2e8\uae30\uc801 \uac1c\uc120\uacfc \uc911\uc7a5\uae30\uc801 \uc81c\ub3c4 \uc815\ube44\uac00 \ud568\uaed8 \ucd94\uc9c4\ub3fc\uc57c \ud55c\ub2e4.<\/p>\n<p>\ub3c5\uc790\uac00 \uc8fc\ubaa9\ud574\uc57c \ud560 \ud5a5\ud6c4 \uad00\uc804 \ud3ec\uc778\ud2b8\ub294 \uc138 \uac00\uc9c0\ub2e4. \uccab\uc9f8, \uc0b0\uc815\ud2b9\ub840 \ub300\uc0c1 \ud655\ub300\uc640 \ubcf8\uc778\ubd80\ub2f4\ub960 \uc870\uc815\uc758 \uad6c\uccb4\uc801 \ub85c\ub4dc\ub9f5, \ub458\uc9f8, \uac74\uac15\ubcf4\ud5d8 \uae09\uc5ec \uc804\ud658\uc758 \uc801\uc6a9 \ubc94\uc704\uc640 \uc6b0\uc120\uc21c\uc704, \uc14b\uc9f8, \uce58\ub8cc \uacf5\uae09 \uc5ed\ub7c9(\uc911\uc785\uc790 \ub4f1 \uace0\ub09c\ub3c4 \uce58\ub8cc)\uc758 \ud655\ucda9 \ubc0f \uc5f0\uad6c \ud22c\uc790 \uacc4\ud68d\uc774\ub2e4. \uc774\ub4e4 \uc0ac\ud56d\uc774 \uba85\ud655\ud574\uc9c8 \ub54c \ud658\uc6b0\uc640 \uac00\uc871\uc758 \ubd80\ub2f4 \uacbd\uac10 \uc5ec\ubd80\ub97c \ud310\uac00\ub984\ud560 \uc218 \uc788\ub2e4.<\/p>\n<h2>\ucd9c\ucc98<\/h2>\n<ul>\n<li><a href=\"https:\/\/www.korea.kr\/news\/policyNewsView.do?newsId=148957099\" target=\"_blank\" rel=\"noopener\">\uc815\ucc45\ube0c\ub9ac\ud551 (\ub300\ud55c\ubbfc\uad6d \uc815\ubd80 \uacf5\uc2dd \uc804\uc790\uc815\ubd80 \ub204\ub9ac\uc9d1)<\/a><\/li>\n<\/ul>\n<\/article>\n","protected":false},"excerpt":{"rendered":"<p>\ud575\uc2ec \uc694\uc57d: \uc774\uc7ac\uba85 \ub300\ud1b5\ub839\uacfc \uae40\ud61c\uacbd \uc5ec\uc0ac\ub294 4\uc6d4 24\uc77c \uc11c\uc6b8 \uc2e0\ucd0c\uc138\ube0c\ub780\uc2a4 \uc5f0\uc138\uc554\ubcd1\uc6d0 \uc911\uc785\uc790\uce58\ub8cc\uc13c\ud130\uc5d0\uc11c \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0\uc640 \uac00\uc871\uc744 \ub9cc\ub098 \ud604\uc7a5 \uc18c\ud1b5 \uac04\ub2f4\ud68c\ub97c \uc5f4\uc5c8\ub2e4. \ub300\ud1b5\ub839\uc740 \ud76c\uadc0\uc9c8\ud658 \uce58\ub8cc\uc758 \uac1c\uc778 \ubd80\ub2f4\uc744 \uc9c0\uc801\ud558\uba70 \uc815\ubd80 \ucc28\uc6d0\uc758 \uc9c4\ub2e8\u00b7\uce58\ub8cc\u00b7\ubcf5\uc9c0 \uc804\ubc18 \uac1c\uc120\ucc45\uc744 \uc900\ube44 \uc911\uc774\ub77c\uace0 \ubc1d\ud614\ub2e4. \ubcf5\uc9c0\ubd80 \uc7a5\uad00, \uc2dd\uc57d\ucc98\uc7a5, \uc9c8\ubcd1\uccad\uc7a5 \ub4f1 \uad00\ub828 \uc7a5\u00b7\ucc28\uad00\uc774 \uad6c\uccb4\uc801 \uc9c8\uc758\uc5d0 \ub2f5\ubcc0\ud588\uace0 \uc815\ubd80\ub294 \uc81c\ub3c4 \uac1c\uc120 \uc758\uc9c0\ub97c \uc7ac\ud655\uc778\ud588\ub2e4. \ud589\uc0ac \ub9d0\ubbf8\uc5d0\ub294 \ud658\uc6b0\uc5d0\uac8c \uc120\ubb3c\uc774 \uc804\ud574\uc9c0\uace0 \ud604\uc7a5 &#8230; <a title=\"\uc774\uc7ac\uba85 \ub300\ud1b5\ub839, \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0\u00b7\uac00\uc871\uacfc \uc2e0\ucd0c\uc138\ube0c\ub780\uc2a4\uc11c \ud604\uc7a5 \uc18c\ud1b5\" class=\"read-more\" href=\"https:\/\/readtrends.com\/ko\/lee-jae-myung-rare-disease-talk\/\" aria-label=\"\uc774\uc7ac\uba85 \ub300\ud1b5\ub839, \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0\u00b7\uac00\uc871\uacfc \uc2e0\ucd0c\uc138\ube0c\ub780\uc2a4\uc11c \ud604\uc7a5 \uc18c\ud1b5\uc5d0 \ub300\ud574 \ub354 \uc790\uc138\ud788 \uc54c\uc544\ubcf4\uc138\uc694\">\ub354 \uc77d\uae30<\/a><\/p>\n","protected":false},"author":1,"featured_media":5368,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"rank_math_title":"\uc774\uc7ac\uba85 \ub300\ud1b5\ub839, \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0\uc640 \ud604\uc7a5 \uc18c\ud1b5 \u2014 \uc815\ucc45\ube0c\ub9ac\ud551","rank_math_description":"\uc774\uc7ac\uba85 \ub300\ud1b5\ub839\uacfc \uae40\ud61c\uacbd \uc5ec\uc0ac\uac00 4\uc6d4 24\uc77c \uc2e0\ucd0c\uc138\ube0c\ub780\uc2a4\uc5d0\uc11c \ud76c\uadc0\uc9c8\ud658 \ud658\uc6b0\u00b7\uac00\uc871\uacfc \uac04\ub2f4\ud68c\ub97c \uc5f4\uace0 \uc0b0\uc815\ud2b9\ub840\u00b7\uac74\uac15\ubcf4\ud5d8 \uae09\uc5ec \ud655\ub300 \ub4f1 \uac1c\uc120 \uc758\uc9c0\ub97c \ud655\uc778\ud588\uc2b5\ub2c8\ub2e4. \uc815\ubd80\uc758 \ud6c4\uc18d \uacc4\ud68d\uacfc \uc7c1\uc810\uc744 \uc815\ub9ac\ud588\uc2b5\ub2c8\ub2e4.","rank_math_focus_keyword":"\ud76c\uadc0\uc9c8\ud658,\uc774\uc7ac\uba85,\uc2e0\ucd0c\uc138\ube0c\ub780\uc2a4,\uc0b0\uc815\ud2b9\ub840,\uac74\uac15\ubcf4\ud5d8","footnotes":""},"categories":[2],"tags":[],"class_list":["post-5372","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-top-stories"],"_links":{"self":[{"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/posts\/5372","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/comments?post=5372"}],"version-history":[{"count":0,"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/posts\/5372\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/media\/5368"}],"wp:attachment":[{"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/media?parent=5372"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/categories?post=5372"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/readtrends.com\/ko\/wp-json\/wp\/v2\/tags?post=5372"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}